We have developed the following list of suggestions (actions and reflections) for researchers based on this guidepost.
We welcome your reactions to any of the suggestions listed. We want to hear both good and bad reactions that you are willing to let us know about and perhaps use as examples in future version of the report or trainings for researchers.
Please post your reactions in the forum, or contact us by any other means (see our contact page.)
How do I…
… consider the unique needs of each person?
o Individualize communication about the study (e.g., when including people with autism in the design of the study, when recruiting participants, and when telling people about results) to meet the diverse needs of people on the spectrum.
When planning research
o Individualize choices about what to study, because not all studies are meaningful for all people or groups.
When doing research
o Individualize consent procedures.
o Individualize research design and data collection procedures (even in very standardized studies, in small ways).
o Individualize support for participants during the study.
o Tailor the language used (e.g., autistic person vs. person with autism) to each individual’s preference.
When sharing research
o After a study, ask participants and researchers to reflect and report on how they felt during the research process; then follow-up as needed.