02/05/2020

We are pleased to announce the first peer-reviewed publication from this project! The article, entitled “Empowerment in decision-making for autistic people in research,” appears in the journal Disability & Society. You can access the published version here, or read the...

10/22/2019

Hello everyone,

I would like to announce a new publication somewhat related to the project on person-oriented research ethics. Ariel Cascio and Eric have an edited volume coming out, published by Oxford University Press. The book is called, Research Involving Participan...

05/14/2019

Welcome to our new subscribers, and thank you to everyone who listened to our INSAR presentation. We have a draft of the Task Force Report available for consultation and are still actively seeking feedback. Please see our original post about the report here, reproduced...

04/25/2019

On May 3, we will be presenting at the Annual Meeting of the International Society for Autism Research (INSAR). The abstract for the presentation is below. If you are in Montréal, please say hi.

TITLE: Person-Oriented Ethics in Autism Research: Recommendations for Resea...

02/13/2019

By request, we have created regional forums for website visitors to connect with each other and discuss local issues. You can find a category for each province and territory on our forums page.

02/08/2019

We are pleased to announce that the task force has written a complete draft of our report on autism research ethics, which presents suggestions researchers can use to include people with autism ethically and meaningfully in research studies. You can view the report her...

07/12/2018

We have finalized our outline and we are transitioning into the writing our report. If there's anything you want to make sure the Task Force is thinking about, be sure to let us know by visiting the forums, emailing us, phoning us, or sending a message through our anon...

05/07/2018

Hello and welcome to our new subscribers. We want to let you know that a "forum" section has been added to the website. We have posted specific questions about your opinions on research ethics (organized into five categories for the five guideposts of person-oriented r...

03/22/2018

Ariel Cascio and Eric Racine have recently published a paper on the model of person-oriented research ethics more broadly, which is the background for this project about person-oriented research ethics and autism. You can read the article here. If you cannot access the...

02/27/2018

The Task Force will be presenting a poster on this project at the CASDA Leadership Summit in Ottawa on April 18-19, 2018. If you will be at the Summit, please come see our poster and say hello.

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